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Information on this and linked website does not necessarily infer endorsement by the Fibromyalgia Support for Worthing and West Sussex.
Any advice or recommendation of a medical or legal nature must always be discussed with a qualified professional.

Registered Charity 1042582

affiliated with FMA UK

webmaster Pete MacKean

January 2014


What is it ?

What Is Fibromyalgia?

FMS (fibromyalgia syndrome) is a chronic wide-spread musculoskeletal pain and fatigue disorder for which the cause is still unknown. Fibromyalgia means pain in the muscles, ligaments and tendons (the soft fibrous tissues in the body).

Most Fibromites say that they ache all over. When they wake in the morning they feel like they have been run over by a truck and are as stiff as a board. They probably did not have a lot of sleep, everything they do during the day hurts and even if they take it easy, by the end of the day their muscles feel like they have done a full day's gardening.

Symptoms and Associated Syndromes Pain

The description of pain in FMS is extensive. Fibromyalgites describe it as deep muscular aching, acute stabbing, throbbing, shooting, burning, gnawing and crawling. The pain moves around the body, it can be general in some areas and acute in others where it seems to settle for some time and then move on. The pain is usually worse after any form of exercise.


This can be constant in some people and periodic in others. This is not like feeling tired. It has been described as a sudden attack of fatigue that has you unable to lift your arms and legs, fighting to keep your eyes open and like you have the weight of an elephant sat on your head. It can be quite frightening if it happens when you are driving a car. Other people have constant or patches of fatigue that does not allow them enough brainpower to recognise what day it is or allow them to do their daily chores.

Brain Fog

Anybody who does not have this could never understand how the brain can get in such a muddle. It is thought that because the brain is processing so many messages of pain it cannot manage all the other messages it gets. Fibromyalgites have forgetfulness, absentmindedness confusion, short-term memory difficulties, extreme mental fatigue and periods of Fibro Fog (Like looking at the world from inside a cloudy glass bottle? detached, distorted and unclear)

Sleep Disorder

Most Fibromyalgites have poor sleep. They wake up in the morning feeling like they have not slept a wink. They have trouble falling asleep or fall asleep easily only to wake at 3.00 or 4.00am and not be able to get back to sleep. This is apparently due to a sleep disorder called alpha-EEG abnormality. This happens due to the deep sleep (level 4 stage of sleep) constantly being interrupted by bursts of awake-like brain activity. Many FMS patients have been found to have other sleep disorders in addition to the alpha-EEG, Such as sleep apnea, sleep myoclonus (night time jerking of the arms and legs) and restless legs syndrome. Those that can sleep often over sleep and cannot seem to help it.

Other Common Symptoms

Stiffness, Headaches, numbness, tingling sensations, muscle twitching and cramping, irritable bladder, constipation, the feeling of swollen extremities, skin sensitivities, dry eyes and mouth, dizziness, visual problems, sensitivities to odours, loud noises and bright lights, painful periods and premenstrual syndrome. (See below for more!)

Aggravating Factors

Changes in the weather, cold, damp or drafty environments, hormonal fluctuations, stress, depression and over-exertion.

What is the Prognosis?

The raising of awareness of Fibromyalgia by individuals, support groups and organisations and medical professionals will all help to improve the quality of life for people living with FM. By seeking new information, talking to others, re-evaluating daily priorities, making lifestyle changes and keeping a hopeful attitude the FM sufferer can become the FM survivor.

50 Symptoms of Fibromyalgia:

1. pain
2. fatigue
3. sleep disorder
4. morning stiffness
5. cognitive or memory impairment
6. irritable bowel
7. chronic headaches
8. TMJ syndrome
9. numbness and tingling sensation
10. muscle twitching
11. skin sensitivities
12. dry eyes and mouth
13. dizziness
14. allergic symptoms
15. Mitral valve prolapse
16. heel or arch pain
17. brain fatigue
18. painful periods
19. chest pains, non cardiac
20. depression
21. panic attacks
22. irritable bladder
23. multiple chemical sensitivities
24. joint hyper mobility
25. suicidal
26. personality changes
27. light-headedness
28. disequilibrium
29. severe muscle weakness
30. intolerance of bright lights
31. alteration of taste, smell, hearing
32. low frequency, sensor neural hearing loss
33. decreased painful sound threshold
34. ringing in the ears
35. exaggerated involuntary rapid eye movement
36. changes in visual acuity
37. intolerance of alcohol
38. enhancement of medication side effects
39. intolerance of previously tolerated medications
40. severe nasal and other allergies possible sinus infections
41. weight change (gain)
42. muscle and joint aches
43. night sweats
44. heart palpitations
45. muscle spasms
46. Reynaud’s-like symptoms
47. carpal tunnel syndrome
48. heartburn
49. difficulty swallowing
50. interstitial cystitis